Isolation – How’s it going so far?

Day +01 to Day +04 – Isolation Life: One Man, One Room, One Wilson

Officially I’ve been in isolation for three days so far. The time has flown by. One man and his thoughts, the Russian media, white pants, a fan and a Wilson – who’d have thought it?

Wednesday – Day +01

One day post Day Zero. I still wasn’t quite right for the full isolation lockdown just yet, despite moving in the day earlier. The leukocytes (defence cells) were still knocking around, much like the unwelcome late stragglers at the end of a house party.

But no problem – I just got myself a bit more comfortable for the stay. Dr. Fedorenko mentioned that “the TV guys” were still planning to come in and film, and would that be okay? “Of course, Doctor!” You know me – I’m such a media tart these days.

‘Leatherhead Man Takes Russia By Storm’

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One for the book I guess.

Moments later, two burly Russian fellas and a tiny producer girl walk in, draped in hospital protectors. Apparently, this is for Russia’s major news station Russia One. (I keep thinking of The One Show theme.) I believe they were after a positive piece on Dr. Fedorenko, his work, and the international recognition it’s been getting. At least that’s what their questions seemed to be about. “Why Dr. Fedorenko? Why Russia?” and so on…

I think I spent the rest of the day editing my Day Zero video. Just another regular video studio – my hospital room.


Thursday – Day +02 – Full Isolation Time

Woken up bright and early for some fluid deposits. I barely even notice them anymore, which is nice – the benefits of being on-tap for blood with a chest catheter, I suppose.

Then Dr. Fedorenko pops in – “Good news!!” he beams. The leukocyte numbers have dropped low enough to officially enter full isolation mode.

Now, being told you’re about to be locked in a room without any real comforts shouldn’t bring much joy – it’s a bit reality TV show-esque – but this one did. A proper chance to rest, to let my body properly recover. I might even get round to using some of the gadgets I brought with me… they’ve barely left the bag. Still not sure how I’ve made myself so busy?


 

alcohol_wash
Fragrant

In comes a small nurse I haven’t seen before, armed with all sorts of alcoholic scrubs and scary-looking Russian bottles. I’m shown the vodka bath I’m to have – a handful of cloths for wiping down after a rinse shower. One cloth for the full body, another for the more delicate areas.

(No one wants the reminder of that one time you sprayed deodorant down there.)

Then she brings in some clothes. Woah – no thank you, it’s okay! I tell her the Doctor’s already seen my cupboard full of clean clothes and underwear. But this is met with a storm of finger-wagging and a cacophony of under her breath noises from her stern little Yoda-esque appearance, as she strutted around the room in full fluster mode.

I lift the clothes up to the light and sigh. All white. Badly cut, under-length pants and the boxiest top I’ve ever seen. I fear I’m about to look like a very bad background artist on Tenko, or some oddball in a John Lennon sit-in.

I relent – I’ll do the pants. No harm there. But I’m wearing my own t-shirt and underwear. No more film crews, I hope.


Meet Wilson

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Wilson

So, since I’m going to be alone in this room, I figured I’d better fashion myself some company. Meet (Castaway-inspired) Wilson, my companion for the week ahead. Some of you on Facebook might already be acquainted with our little miserable friend.

“Wilson didn’t like my successful blood scores this morning. He’s now stuck within these four walls with me. It’s #isolation time!”


Friday – Day +03 – Minor Wobbles

Didn’t start too brightly today. As fine as the chemotherapy has been, it does leave your internal digestion needing a bit of care. So, annoyingly, there was a bit of a quick hop to the loo this morning. No big deal – but I think it had a bit of a knock-on effect for how I felt the rest of the day.

The good news came from the good Doctor himself – leukocytes more than halved again on yesterday’s score. Normal numbers in the blood are between 4–10. Mine were down to 0.14. So the remainder of my previous immune system really is now hanging by a thread.

Blood pressure check – all good. Or so I thought.


A Bit Toasty

Around 2pm, my usual check-up nurse arrives. Blood pressure reasonably fine, but I do say that I’m feeling the heat a bit. Sure enough, my temp reads 37.6°.

Quick as a flash, Dr. F returns – I thought he’d already left for the day!

“Okay, your body is a little high – it happens in about 1 in 3 patients and is easily remedied,” he says. “We’ll put you on a course of steroids and antibiotics just to be sure, and we’ll monitor you regularly. But you’ve got nothing to worry about!”

I felt calm anyway – just a bit warm – but his reassurance is always welcome.

Very quickly, in come the drips and I’m hooked up. Ten minutes later, I’m feeling cool and comfortable, with a fan in the room to boot.

They checked in on me pretty much on the hour for the rest of the day, my temp hovering between 36.8 and 37.1°. Dr. Nikolai came in later to say they’d thoroughly reviewed my morning bloodwork and found nothing concerning. The earlier upset stomach probably just triggered things.

The nurses today were absolutely brilliant – always smiling, always on the ball, bringing all the fluids I needed.


I uploaded my Day Zero video – just a few thoughts from the day (bit gushy, I’ll admit) – but people have been so lovely about it. Thank you!!

As evening rolled in, still feeling comfortable, I figured I’d make the most of it and aim for a nice early night. Head down around 9pm. Let’s hope for a better start tomorrow.

Today had another minor hiccup on the road to Getting Rid. If it’s not me out gallivanting for a ‘coffee’, I’m raising my temperature just to give you something to read. You didn’t want a boring blog now, did you?

You’re so welcome. 😉 


Saturday – Day +04

wilson_02“That’s the third time this morning Wilson has done this. We need to talk… just not now. #isolation”

I’m pleased to say a good 11 hours sleep last night really helped. Feeling good, carrying on from where I left off yesterday.

More checks this morning from the nurses, all good. Another update from Dr Fedorenko about my blood test – no infections and my Leukocytes have halved yet again. Down to just 0.07. It’s believed that this will carry on for the next couple of days, dropping off the scale before the stem cells kick in with their new party piece.

And nothing really more to add today – it’s a day in isolation, but a good one. Again the nurses have been extra attentive, but not quite with the previous frequency as needed before.

wilson_03Maybe just one more from Wilson today.

I snook this picture of Wilson earlier on and threatened that I’d upload it if he didn’t stop walking in on me. He didn’t listen, so here it is then. #isolation

8 thoughts on “Isolation – How’s it going so far?

  1. Annie Stevend's avatar Annie Stevend

    Hi, loving your blog. Hope u don’t mind a couple of questions – what type of MS do u have? Why Russia? U obviously have a great sense of humour. Love to Wilson x

    Liked by 1 person

    1. Hey Annie! Thank you I try to keep it fun. I have RRMS, but Dr Fedorenko believes that I was becoming close to secondary. I chose Russia because I’d heard such great things about him, his great results and experience and care. I certainly don’t regret it. 🙂 X

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  2. Karen Burmark's avatar Karen Burmark

    Alex, Always enjoy your posts! You always make my day and help my spirits to climb! Hello to Wilson…glad you are keeping an eye on him – he appears to have a knack for interesting adventures!!

    Liked by 1 person

    1. Thanks Karen, I’m pleased I can do that for you. I wanted to make the blog I would want to read. Hahaha – Everyone loves Wilson!! …just be grateful you don’t have to listen to him!

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  3. Janet Fleet's avatar Janet Fleet

    Hi Alex, do you mind if I ask where exactly you are from? Have commented before and told you our daughter is on the waiting list. We live in Torbay and the Palm tree is our “sort of” emblem. Was just wondering if you were from around here too because of “thepoaslmoff” name? Keep busy. Jan Fleet

    Liked by 1 person

    1. Not at all Janet. The Palm Off sadly isn’t anything as romantic as an emblem of a town or place. ThePalmOff is the name of my small YouTube channel, to ‘Palm off’ information is the thought. It’s an attempt at some humour since I could no longer play the sports I used to, though it can be a bit rude and sweary. Sorry about that. 🙂 …but I’m otherwise from Leatherhead in Surrey.

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      1. Janet Fleet's avatar Janet Fleet

        Sorry to hear you are not local to us. Would have been nice to meet you in person on your return but never mind. Hey, you never know, you might get back to playing those sports! Fingers crossed for you. Jan

        Liked by 1 person

      2. Awww I’m sorry Janet, and how lovely it would have been to meet yourself, Angie and family – never say never, we may be down to Poole sometime soon?. 🙂 Certainly fingers crossed with a little sport return! X

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